Optimum Patient Care (OPC) is thrilled to announce its membership to the UK Health Data Research Alliance. This marks an important milestone in its commitment to advancing healthcare solutions through collaborative and data driven research.
The UK Health Data Research Alliance is a collective network of healthcare and research organisations working to establish best practices for the ethical use of UK health data for research. By joining the Alliance, it allows for the opportunity to collaborate and share resources with key partners in healthcare and research.
Professor David Price, Founder and CEO of OPRI (UK & Singapore) and OPC (Global, UK, and Australia), expressed his support for the Alliance. He stated, 'The Alliance is an important forum for sharing resources and shaping the direction for future data provision and research across the UK. We are fully supportive of the federated TRE approach and look forward to collaborating with partners and making our contribution to improving the wider UK health data research infrastructure.'
OPC's membership in the Alliance gives the chance to join other industry partners as a collective voice at a national level to promote best practices for the ethical use of UK health data.
Learn more about the UK Health Data Research Alliance
The Optimum Patient Care Research Database (OPCRD) is a United Kingdom based real-world, longitudinal research database, which is approved by the NHS HRA Research Ethics Committee (NHS HRA REC ref: 20/EM/0148) to provide anonymised data for research purposes. OPCRD has been in operation for 13 years and currently holds de-identified data for over 19.9 million unique patients, from GP electronic health records from over 1,100 primary care practices. The current number of registered patients actively contributing data to OPCRD is 10.1 million patients, approximately 15% of the current UK population. This data is further enhanced through the collection of patient reported (questionnaire) information collected as part of the OPC quality improvement (QI) and research support services provided as a no-cost service to GP practices in the UK.
OPCRD is also one of the fastest growing UK databases, growing at over 3 million patients per year, with a total of 15.6 million patients added in the past 5 years.
It is a high-quality data source used regularly in clinical, epidemiological, and pharmaceutical research. The dataset has been used for QI programmes and research in rare disease and chronic diseases and the database has been referenced in over 100 peer-reviewed journals. OPCRD is governed by the Anonymised Data Ethics & Protocol Transparency (ADEPT) Committee, an independent body of experts and regulators commissioned by the Respiratory Effectiveness Group (REG).
We are an EHDEN data partner and have completed the OMOP CDM mapping in 2023. The project received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement no 806968.